Programme
The Ninth Global Forum on Bioethics in Research
The Forum will cover three days. The first two days will follow the same format with a keynote speaker who will introduce the topic area and then a panel of international experts who will provide comment on the topic area from their particular perspectives. This will be followed by four separate breakout sessions at which a case study, on aspects of the topic area, will be presented. On the third day a case study will be presented, followed by breakout sessions where delegates will be able to consider the themes and issues that they have discussed in the previous two days, using those insights to address the issues raised in the case study. At the end of each day there will be feedback and discussion on the issues raised at the breakout sessions.
The Final Programme can be found below, or downloaded as a pdf document here.
The Case Studies publication can be downloaded as a pdf document here.
| Day One - Wednesday 3 December 2008 |
| 9:00am – 10:00am |
Mihi Whakatau/Welcome |
| Hon Anand Satyanand - Governor General of Aotearoa/New Zealand |
| 10:00am – 10:30am |
Morning Tea |
| 10:30am – 10:40am |
Introduction of plenary speakers - Clive Aspin (Aotearoa/New Zealand) |
| |
|
Speaker |
Title |
| 10:40am – 11:10am |
Plenary speaker |
Mason Durie (Aotearoa/New Zealand) |
Bioethics, Indigeneity, and Maori Experience |
| 11:10am – 11:40am |
Plenary speaker |
Karina Walters (United States of America) |
Research Issues for Indigenous Populations |
| 11:40am – 12:10pm |
Plenary speaker |
Bebe Loff (Australia) |
Vulnerability in Research |
| 12:10pm – 12:30pm |
Presentation |
Partners |
History of GFBR |
| 12:30pm – 1:15pm |
Lunch |
| 1:15pm – 2:45pm |
Case Studies
| Stream 1 |
Stream 2 |
Stream 3 |
Stream 4 |
Francis Masiye (Malawi) - Partial Disclosure of Information versus Potential Benefits of Health Research
Aceme Nyika (Tanzania) – Research on Orphans
|
Carol Zavaleta Cortijo (Peru) - Ethics Considerations in a Study about HIV and Syphilis in Native Communities in Peru
Keymanthri Moodley (South Africa) - Domiciliary Consent in a Community-Based Tuberculosis Prevalence Study: A South African Perspective
|
Beverley Essue, Masoud Mirzaei, Kate Corcoran, Joyce Davison and Elaine Gordon (Australia) - Is it Really ‘Too Hard’?: The Serious and Continuing Illness Policy and Practice Study (SCIPPS) Experience of Conducting Research with Vulnerable Groups in Western Sydney, Australia
|
Martin Anu Nkematabong (Cameroon) - The Local Media and Tenofovir Trial in Cameroon, 2005
Cheryl Overs (United Kindgom) - Sex workers Reject an HIV Prevention Trial in Cambodia
|
|
| 2:45pm – 3:15pm |
Afternoon tea |
| 3:15pm – 3:45pm |
Feedback from streams |
| 3:45pm – 4:45pm |
Panel Plenary
Justice and the colonised |
Moana Jackson (Aotearoa/New Zealand)
Debra Harry (United States of America)
Naida Glavish (Aotearoa/New Zealand)
|
| 4:45pm – 5:00pm |
Concluding presentation/summary of day’s discussion – Doris Schroeder (Australia) |
| 7:00pm - Dinne |
Plenary |
Pita Sharples (Aotearoa/New Zealand) |
| Day Two - Thursday 4 December 2008 |
| 9:00am – 9:15am |
Welcome to Day Two/Summary of Day One - Esther Cowley Malcolm (Aotearoa/New Zealand) |
| |
|
Speaker |
Title |
| 9:15am – 9:45am |
Plenary speaker |
Vic Muñoz (United States of America) |
Reducing Vulnerability Through Indigenizing Research Methodologies with Gender and Sexual Minorities |
| 9:45am – 10:15am |
Plenary speaker |
Ian Anderson (Australia) |
Values and Ethics: Guidelines for Research in Aboriginal and Torres Strait Islander Health Contexts |
| 10:15am – 10:45am |
Morning Tea |
| 10:45am – 12:15pm |
Case Studies
| Stream 1 |
Stream 2 |
Stream 3 |
Stream 4 |
Fatima Castillo (Philippines) - A Case for Iterative Informed Consent in Research with Indigenous Peoples
Rosa Castillo (Philippines) - Anthropology and Mining in the Philippines: Ethical Issues in Conducting Social Impact Studies Among Indigenous Peoples
|
Roger Chennells (South Africa) - San Peoples of Southern Africa and Their Traditional Knowledge Relating to the Hoodia
Clark Peteru (Samoa) - Access and Benefit Sharing issues in the Pacific: The Fable of the Mamala Tree
|
Aceme Nyika (Tanzania) - The Trovan Trial Case Study: After Profits or to Save Lives?
|
Fiona Cram (Aotearoa/New Zealand) - Regaining the Centre - The Ethics of Researching by, with and for Maori
Melanie Cheung (Aotearoa/New Zealand) - Tikanga Maori in the Laboratory: Shaping Culturally Safe, Respectful and Dignified Scientific Practices
|
|
| 12:15pm – 1:00pm |
Lunch |
| 1:00pm – 1:45pm |
Feedback from streams |
| 1:45pm – 3:15pm |
Case Studies |
| |
| Stream 1 |
Stream 2 |
Stream 3 |
Stream 4 |
Francis Masiye (Malawi) - Different Protocol Review Outcomes Between Developed and Developing Countries Ethics Committees
Virginia Rodriguez (El Salvador) - Genetic Screening of Meso-American People with Psychiatric Disorders
|
Moses Limo (Kenya) - Bioethics Regulation of Biomedical Research Involving Vulnerable Populations in Kenya
Blanca Pelcastre-Villafuerte (Mexico) - Ethical Issues on Indigenous Communities’ Reproductive Health and Gender Violence: Health Houses’ Experience.
Consideraciones éticas sobre salud reproductiva y violencia de género en comunidades indígenas: la experiencia de las casas de salud
|
Maui Hudson and Karlo Mila-Schaaf (Aotearoa/New Zealand) - Negotiating Ethical Spaces for Indigenous Knowledge Production
Le’a Malia Kanehe (Hawaii, USA) - The Indigenous Research Protection Act: A Model Tribal Code to Change the Research Paradigm
|
Jeff Reading, Willie Ermine and Doris Cook (Canada) - Canadian Efforts in Addressing Ethics of Research Involving Aboriginal Peoples
|
|
| 3:15pm – 3:45pm |
Afternoon tea |
| 3:45pm – 4:30pm |
Feed back from streams |
| 4:30pm – 5:00pm |
Plenary |
Kabini Sanga (Solomon Islands) |
The ethics of researching the unstated in Pacific contexts |
| 5:00pm – 5:15pm |
Concluding presentation/summary of day’s discussion – Donna Gardiner (Aotearoa/New Zealand) |
| 7:00pm - Dinner |
Plenary speaker |
Colin Tukuitonga (Aotearoa/New Zealand) |
| Day Three - Friday 5 December 2008 |
| 9:00am – 9:15am |
Welcome/Summary of proceedings so far/ Introduce plenary speaker - Robin Olds (Aotearoa/New Zealand |
| |
|
Speaker |
Title |
| 9:15am – 9:45am |
Plenary speaker |
Ngiare Brown (Australia) |
Strategies to help future generations to make a positive difference |
| 9:45am – 10:15am |
Plenary speaker |
Aroha Mead (Aotearoa/New Zealand) |
Perspectives of the Chair of the International Union for the Conservation of Nature (IUCN) Commission on Environmental, Economic and Social Policy |
| 10:15am – 10:45am |
Morning Tea |
| 10:45am – 11:45am |
Closing session |
Clive Aspin and representatives from the Scientific Programme Committee |
Summary of GFBR9 |
| Carel Ijsselmuiden (Switzerland) |
Thank you from the Partners, hand over to Chile for GFBR10 |
| 11:45am – 12:15pm |
Presentation |
Representatives from Chile) |
GFBR10 |
| 12:15pm – 12:30pm |
Closing |
HRC Kaumatua, Ngarau Tupaea (Aotearoa/New Zealand) |
| 12:30pm – 1:30pm |
Lunch |
| |
The Ninth Global Forum on Bioethics in Research concludes |
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